As Christmas approaches, traditionally our work at Cystic Fibrosis WA slows down. We take the opportunity to catch up on our filing and archiving,
Cystic Fibrosis WA is aiming for a world free of CF. Picture: Shutterstock
It was while doing that this week that I came across a truly amazing Christmas story.
In 2012, Cystic Fibrosis WA entered an international competition to write a short poem about our work, a competition run by the CTK Foundation in the USA.
We put together a poem that was inspired by a young boy living with CF who came into my office just before Christmas that year.
I asked him what he wanted for Christmas, he smiled though his pain an discomfort and said simply: "A day off, please".
Sadly, he is no longer with us.
Pounding purging, coughing, splurging
Rubbing, hitting, gasping, spitting,
One day off is all I need,
One day’s living free of care,
One day as a normal child
A chance to steal some cool, clear air.
Happy Christmas everyone, especially all you lovely people at Ys.
May 2018 bring us ever closer to our vision of a world where lives are unaffected by CF.